Advanced EUPATI Training for Increased Patient Involvement in HTA

ongoing

The importance of patient engagement in Health Technology Assessment (HTA) is today widely recognised, and patients and patient organisations will play a vital role in the implementation of the new EU framework for HTA Regulation ((EU) 2021/2282). To facilitate this, patients will require access to training, education and information on HTA and the ways in which they can be involved. Over the past 10 years, The European Patients’ Academy on Therapeutic Innovation (EUPATI) has become a key multi-stakeholder actor for patient engagement in Europe, with an extensive track record in patient education in medicines research and development (R&D). It has trained over 200 patients experts (EUPATI Fellows), 450 online learners via EUPATI Open Classroom and 500 professionals (through EUPATI Fundamentals). EUPATI has become the ‘go to’ portal for independent, user-friendly information on medicines R&D (5.6 million users of the Toolbox in 13 languages), along with becoming the main point of contact at national level through its network of 23 National Platforms across Europe. In this project EUPATI will address subtopic (a) HS-g-22-20.01 ‘patient experts’ and proposes to: 1) Update EUPATI’s existing patient training content on HTA aligning with the new Regulation 2) Design an e-learning training course for patients on HTA and the specific requirements for the new Regulation 3) Develop interactive online training sessions (in 5 languages) preparing participants to take part in joint clinical assessments and joint scientific consultations with national HTA bodies 4) Develop and implement sustainability measures to ensure continuity of the project outputs into the future The new HTA Regulation represents a unique opportunity to enhance the role of patients and patient representatives in HTA processes. In this respect, this project is in full alignment with EUPATI’s mission to further patient engagement in medicines R&D through education.