Congenital Conditions

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The purpose of the Prenatal and Postnatal Diagnosed Conditions awareness program is to provide information and support services to families receiving a diagnosis for Down syndrome, spina bifida, dwarfism, or other prenatally or postnatally diagnosed conditions. The grantee will work with support groups and health professionals in the collection and dissemination of current science based information and to coordinate the provision of supportive services to parents who receive a positive diagnosis prenatally, at birth, or up to one year after the affected child's birth. These services may include the expansion and further development of national and local peer-support programs. Competitive grants may be made to States and territories, localities, and non-governmental organizations with expertise in these conditions. The purpose of this funding opportunity is for family support groups to work with health professionals, state genetic services programs and Health Resources and Services Administration, (HRSA)/Maternal and Child Health Bureau (MCHB) funded projects on a set of activities leading to increased awareness and education for families (including potential adoptive parents) regarding general knowledge of prenatally/postnally diagnosed conditions. Funding may be used to collect and disseminate current evidence-based information and to coordinate the provision of supportive services to parents who receive a positive diagnosis prenatally, at birth, or up to one year after the affected child's birth. These services may include the expansion and further development of national and local peer-support programs; the creation of a telephone hotline which would provide parents with information on the physical, developmental, educational, and psychosocial aspects of the condition; and awareness and education programs for the healthcare providers who provide, interpret, and inform parents of the results of positive test diagnoses for congenital conditions.

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