Family/Professional Partnership/ CSHCN

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The purpose of the National Center for Family/Professional Partnerships is to establish a family led national "community of learners and mentors" to: assist State Title V Children with Special Health Care Needs Programs and their partners implement family/professional partnerships; assist and prepare families in becoming informed partners in decision making; support the implementation and maintaining of Family-To-Family Health Information Centers (F2F HICs)and collect and analyze data from the F2F HICs and other partners and issues for families, outcomes from the centers and the status of family/professional partnerships and family centered care across the country. The national center will support these efforts through the provision of technical assistance and consultation and linking mentor family/center consultants with each other and other MCHB funded programs. The overall goal is to implement the core component of a system of care for CYSHCN: families of CYSHCN will partner in decision making at all levels and will be satisfied with the services they receive. The purpose of the National Center for Cultural Competence is to increase the capacity of health programs and their partners to design implement, and evaluate culturally and linguistically competent CYSHCN and SIDS/OID service delivery and support systems; promote the establishment of a national "community of learners and mentors" to incorporate cultural competence in State implementation efforts around the six core outcomes of a service system for CYSHCN and their families; to assist MCHB programs and partners involve and better serve diverse consumers, key stakeholders and communities; and enhance training curricula, and recruitment and retention of culturally and linguistically diverse trainees and faculty in MCHB funded training programs. Both National Centers will facilitate the development and dissemination of resource materials and products including published articles and fact sheets; maintain and update an informational website; develop a viable technical assistance and training process thhat includes developing "a community of learners and mentors"; link with and learn from other MCHB funded national centers, grant programs, state and local CSHCN/MCHB programs, families and consumers; and collect, analyze, and expand the current body of evidence-based data on the outcomes in their prospective focus areas (family/professional partnerships and family-centered care and utilizing culturally competent approaches, respectively). Core values across these centers include family-centered care, family/professional partnerships and cultural and linguistic competence. These MUST be adequately integrated throughout both National Centers' policies and activities.

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