Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program

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This announcement solicits applications for the Sickle Cell Treatment Demonstration Regional Collaboratives Program.  The purpose of this funding opportunity is to fund Regional Coordinating Centers (RCC) that will establish regional networks and provide leadership and support for regional and statewide activities that will develop and establish systemic mechanisms to improve the prevention and treatment of Sickle Cell Disease, by: (1) increasing the number of providers treating individuals with sickle cell disease using the National Heart, Lung and Blood Institute (NHLBI) Evidence-Based Management of Sickle Cell Disease Expert Panel Report;[1] (2) using telementoring, telemedicine[2] and other provider support strategies to increase the number of providers administering  evidence-based sickle cell care; and 3) developing and implementing strategies to improve access to quality care with emphasis on individual and family engagement/partnership, adolescent transitions to adult life, and care in a medical home. [1] National Heart, Lung and Blood Institute (NHLBI) Evidence-Based Management of Sickle Cell Disease Expert Panel Report can be found online.  A quick guide of the recommendations can be found at: http://www.nhlbi.nih.gov/sites/www.nhlbi.nih.gov/files/Evd-Bsd_SickleCellDis_Rep2014.pdf  [2] According to the American Telemedicine Association, telemedicine is the use of medical information exchanged from one site to another via electronic communications to improve a patient’s clinical health status.  Telemedicine includes a growing variety of applications and services using two-way video, email, smart phones, wireless tools and other forms of telecommunications technology.  (http://www.americantelemed.org/main/about/telehealth-faqs- )

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