ADRD Registry

2026-11-03

Please note : This is a Sole Source Notification . Performance and / or Design Requirements ( e . g . intended use , function or application , compatibility , requirements ; reference to policy , rule , statute or other act of the Legislature , etc ., as appropriate ): Infrastructure Services • Secure server environment ( cloud or on - premises ) • HIPAA - compliant storage • Encrypted data transfer • Secure access ( VPN or equivalent ) • Role - based access controls • Logging and audit trails • Backup and disaster recovery ; Compliance and Security • HIPAA compliance framework • Security risk assessments • Alignment with state and federal privacy laws • Support for Data Use Agreement ( DUA ) compliance • Incident response procedures This includes : • Secure data infrastructure • HIPAA - compliant data storage and computing environment • Encrypted data transfer and controlled access systems • IT security controls and monitoring • Data governance and compliance support • Technical hosting and maintenance services • Potential IRB and research compliance support ( if applicable ); Justification for single source acquisition ( what is necessary and unique about the product , service or source ; steps taken to confirm unavailability of competition , as appropriate ): 1 . Unique Capabilities and Expertise The proposed vendors , Dr . Christine Sapienza and Dr . Susan Cahn , possess a unique and complementary combination of expertise that is not available from other known providers . Dr . Christine M . Sapienza • Nationally recognized academic and healthcare leader with over 125 publications and significant citation impact • Extensive experience leading large - scale academic and healthcare programs as Provost , Dean , and Executive Vice President • Proven success in building and scaling healthcare initiatives , including rapid expansion of a major health sciences college • Inventor of the EMST150 , a globally adopted medical device • Deep expertise in neurological and respiratory conditions relevant to aging populations ; Dr . Susan Brandeis Cahn • Doctor of Public Health with over 30 years of experience in healthcare policy , data systems , and program evaluation • Extensive work with the Centers for Medicare & Medicaid Services ( CMS ), including : o Evaluation of Accountable Care Organization ( ACO ) models o Medicare telehealth policy analysis for reports to Congress o Medicaid 1115 waiver and payment model analysis • Expertise in : o Medicare and Medicaid claims data o Health system financing and policy o Health equity and disparities research o Large - scale data analysis and program evaluation ; 2 . Combined Expertise ( Uniqueness of Vendor Team ) No other vendor is known to provide this integrated combination of capabilities , including : • Clinical and translational expertise in neurological and aging populations • Advanced knowledge of federal healthcare data systems ( Medicare / Medicaid ) • Experience designing and evaluating large - scale health programs • Ability to align data infrastructure with both clinical outcomes and public policy need

Florida

2026-05-09